Paediatric Palliative Care
Paediatrics Prize Essay
Keywords:
MedicineReferences
1. European Association for Pallia- tive Care (2009) Palliative Care for Infants, Children and Young People: The Facts. The Fondazione Maruzza Lefebvre D’Ovidio Onlus, Europe. Retrieved from http://www.eapcnet. eu/LinkClick.aspx?fileticket=DeiV2yht OZA%3d&tabid=286 on 1 April 2011.
2. Himelstein B. (2006) Palliative Care for Infants, Children, Adolescents, and Their Families. Journal of Pallia- tive Medicine 9(1), 163-181.
3. Tan G. H., Totapally B. R., Torbati D. & Wolfsdorf J. (2006) End-of-Life Decisions and Palliative Care in a Children’s Hospital. Journal of Pallia- tive Medicine 9(2), 332-342.
4. Department of Health and Chil- dren (2009) Palliative Care for Chil- dren with Life-Limiting Conditions in Ireland – A National Policy. Statio- nery Office, Dublin.
5. Brandon D., Docherty S. L. & Thor- pe J. (2007) Infant and Child Deaths in Acute Care Settings: Implications for Palliative Care. Journal of Pallia- tive Medicine 10(4), 910-918.
6. O’Brien I. & Duffy A. (2010) The developing role of the children’s nurses in community palliative care. British Journal of Nursing 19(15), 977-981.
7. Rowse V. (2006a) Home-based pal- liative care for children: the case for funding. Paediatric Nursing 18(7), 20-24.
8. Benini F., Trapanotto M., Spizzichi- no M., Lispi L. Visona dalla Pozza L. & Ferrante A. (2010) Hospitalization in Children Eligible for Palliative Care. Journal of Palliative Medicine 13(6), 711-717.
9. Malcolm C., Forbat L., Knighting
K. & Kearney N. (2008) Exploring the experiences and perspectives of fam- ilies using a children’s hospice and professionals providing hospice care to identify future research priorities for children’s hospice care. Palliative Medicine 22, 921-928.
10. National Children’s Strategy (2000) Our Children – Their Lives. Stationery Office, Dublin
11. Calabrese C. L. (2007) ACT – for Pediatric Palliative Care. Paediatric Nursing 33(6), 532-534.
12. McNamara-Goodger K. & Cooke R. (2008) Children’s and young people’s palliative care: good prac- tice guidelines. Primary Health Care 19(2), 40-47.
13. Wright B., Aldridge J., Wurr k., Sloper T., Tomlinson H. & Miller M. (2009) Clinical dilemmas in children with life-limiting illnesses: decision making and the law. Palliative Medi- cine 23, 238-247.
14. Department of Health and Chil- dren (2001) Report of the National Advisory Committee on Palliative Care. Stationery Office, Dublin.
15. Department of Health and Chil- dren (2005) A Palliative Care Needs Assessment for Children. Stationery Office, Dublin.
16. Health Service Executive and Irish Hospice Foundation (2008) Pallia- tive Care for All: Integrating Pallia- tive Care into Disease Management Frameworks. Irish Hospice Founda- tion, Dublin.
17. Pontin D. & Lewis M. (2008) Managing the Caseload: A Qualita- tive Action Research Study Exploring How Community Children’s Nurses Deliver Services to Children Living with Life-Limiting, Life-Threatening, and Chronic Conditions. Journal for Specialists in Pediatric Nursing 13(1), 26-35.
18. Siden H., Miller M., Straatman L., Omesi L., Tucker T. & Collins J. J. (2008) A report on location of death in paediatric palliative care between home, hospice and hosptial. Pallia- tive Medicine 22, 831-834.
19. Neilson S., Kai J., MacArthur C.
& Greenfield S. (2010) Exploring the experiences of community-based children’s nurses providing palliative care. Paediatric Nursing 22(3), 31-36.
20. Rowse V. (2006b) Palliative care for children: a public health initiative. Paediatric Nursing 18(4), 41-45.
21. Toce S. & Collins M. A. (2003) The FOOTPRINTS Model of Pediatric Palliative Care. Journal of Palliative Medicine 6(6), 989-1000.
22. Davies B., Sehring S. A., Partridge J.C., Cooper B. A., Hughes A., Philp
J. C., Amidi-Nouri A. & Kramer R. F. (2008) Barriers to Palliative Care for Children: Perceptions of Pediatric Health Care Providers. Pediatrics 121, 282-288.
23. Association for Children with a Life-Threatening Illness (ACT) and Royal College of Paediatrics and Child Health (RCP&CH) (2003) Guide to the Development of Paediatric Palliative Care Services, 2nd edn. ACT/RCP&CH, London.
24. Willis E. (2007) Symptom care flowcharts: a case study. Paediatric Nursing 19(1), 14-17.
25. Vats T. S. & Reynolds P. D. (2006) Pediatric Hospital Dying Trajectories: What We Learned And Can Share. Pediatric Nursing 32(4), 386-392.
26. Mackenzie J. & MacCallam J. (2009) Preparing staff to provide be- reavement support. Paediatric Nurs- ing 21(3), 22-24.
27. Zelcer S., Cataudella D., Cairney A. E. L. & Bannister S. L. (2010) Pallia- tive Care of Children with Brain Tu- mors. Archive of Pediatric and Ado- lescent Medicine 164(3), 225-230.
28. Pearson H. (2010) Managing the emotional aspects of end of life care for children and young people. Pae- diatric Nursing 22(7), 31-36.
29. Knapp C. A., Madden V. L., Curtis C. M., Sloyer P. & Shenkman E. A. (2010) Family Support in Pediatric Palliative Care: How Are Families Im- pacted by their Children’s Illnesses?. Journal of Palliative Medicine 13(4), 421-426.
30. Matthews K., Gambles M., El- lershaw J. E., Brook L., Williams M., Hodgson A. & Barber M. (2006) De- veloping the Liverpool Care Pathway for the Dying Child. Paediatric Nurs- ing 18(1), 18-21.
31. O’Brien I., Duffy A. & Nicholl H. (2009) Impact of childhood chronic illnesses on siblings: a literature review. British Journal of Nursing 18(22), 1358-1365.
32. Erichsen E., Hadd Danielsson E.
& Friedrichsen M. (2010) A phenom- enological study of nurses’ under- standing of honesty in palliative care. Nursing Ethics 17(1), 39-50.
33. Dunlop S. (2008) The dying child: should we tell the truth?. Paediatric Nursing 20(6), 28-31.
34. Brook L. & Hain R. (2008) Predict- ing death in children. Archives of Dis- ease in Childhood 93, 1067-1070.
35. Davies R. (2003) Establishing need for palliative care services for children/young people. British Jour- nal of Nursing 12(4), 224-232.
36. Ewing B. (2009) Wish Fulfillment: Palliative Care and End-of-Life In- tervention. Pediatric Nursing 35(2), 81-85.
37. Clarke J. & Quin S. (2007) Pro-
fessional Carers’ Experiences of Providing a Pediatric Palliative Care Service in Ireland. Qualitative Health Research 17(9), 1219-1231.
38. Keene E. A., Hutton N., Hall B. & Rushton C. (2010) Bereavement De- briefing Sessions: An Intervention to Support Health Care Professionals in Managing Their Grief After the Death of a Patient. Pediatric Nursing 36(4), 185-189.
39. Rushton C. H. (2005) A Frame- work for Integrated Pediatric Pallia- tive Care: Being with Dying. Journal of Pediatric Nursing 20(5), 311-325.
40. Hylton Rushton C., Reder E., Hall B., Comello K., Sellers D. E. & Hutton N. (2006) Interdisciplinary Interven- tions To Improve Pediatric Palliative Care and Reduce Health Care Profes- sional Suffering. Journal of Palliative Medicine 9(4), 922-933.
41. Children’s Sunshine Home (2010). Information downloaded from http://www.sunshinehome.ie/ on 15th April 2011.
42. O’Leary N., Flynn J., MacCallion A., Walsh E. & McQuillan R. (2006) Paediatric palliative care delivered by an adult palliative care service. Pal- liative Medicine 20, 433-437.
43. Romesberg T. L. (2004) Under- standing Grief; A Component of Neonatal Palliative Care. Journal of Hospice and Palliative Nursing 6(3), 161-170.
44. Morgan D. (2009) Caring for Dy- ing Children: Assessing the Needs of the Pediatric Palliative Care Nurse. Pediatric Nursing 35(2), 86-90.
45. Rainbows Children’s Hospice (2008) Basic Symptom Control in Paediatric Palliative Care. Retrieved from http://cnpcc.ca/documents/20 08RainbowHospiceSymptomControl- Manual.pdf on 1 April 2011.
2. Himelstein B. (2006) Palliative Care for Infants, Children, Adolescents, and Their Families. Journal of Pallia- tive Medicine 9(1), 163-181.
3. Tan G. H., Totapally B. R., Torbati D. & Wolfsdorf J. (2006) End-of-Life Decisions and Palliative Care in a Children’s Hospital. Journal of Pallia- tive Medicine 9(2), 332-342.
4. Department of Health and Chil- dren (2009) Palliative Care for Chil- dren with Life-Limiting Conditions in Ireland – A National Policy. Statio- nery Office, Dublin.
5. Brandon D., Docherty S. L. & Thor- pe J. (2007) Infant and Child Deaths in Acute Care Settings: Implications for Palliative Care. Journal of Pallia- tive Medicine 10(4), 910-918.
6. O’Brien I. & Duffy A. (2010) The developing role of the children’s nurses in community palliative care. British Journal of Nursing 19(15), 977-981.
7. Rowse V. (2006a) Home-based pal- liative care for children: the case for funding. Paediatric Nursing 18(7), 20-24.
8. Benini F., Trapanotto M., Spizzichi- no M., Lispi L. Visona dalla Pozza L. & Ferrante A. (2010) Hospitalization in Children Eligible for Palliative Care. Journal of Palliative Medicine 13(6), 711-717.
9. Malcolm C., Forbat L., Knighting
K. & Kearney N. (2008) Exploring the experiences and perspectives of fam- ilies using a children’s hospice and professionals providing hospice care to identify future research priorities for children’s hospice care. Palliative Medicine 22, 921-928.
10. National Children’s Strategy (2000) Our Children – Their Lives. Stationery Office, Dublin
11. Calabrese C. L. (2007) ACT – for Pediatric Palliative Care. Paediatric Nursing 33(6), 532-534.
12. McNamara-Goodger K. & Cooke R. (2008) Children’s and young people’s palliative care: good prac- tice guidelines. Primary Health Care 19(2), 40-47.
13. Wright B., Aldridge J., Wurr k., Sloper T., Tomlinson H. & Miller M. (2009) Clinical dilemmas in children with life-limiting illnesses: decision making and the law. Palliative Medi- cine 23, 238-247.
14. Department of Health and Chil- dren (2001) Report of the National Advisory Committee on Palliative Care. Stationery Office, Dublin.
15. Department of Health and Chil- dren (2005) A Palliative Care Needs Assessment for Children. Stationery Office, Dublin.
16. Health Service Executive and Irish Hospice Foundation (2008) Pallia- tive Care for All: Integrating Pallia- tive Care into Disease Management Frameworks. Irish Hospice Founda- tion, Dublin.
17. Pontin D. & Lewis M. (2008) Managing the Caseload: A Qualita- tive Action Research Study Exploring How Community Children’s Nurses Deliver Services to Children Living with Life-Limiting, Life-Threatening, and Chronic Conditions. Journal for Specialists in Pediatric Nursing 13(1), 26-35.
18. Siden H., Miller M., Straatman L., Omesi L., Tucker T. & Collins J. J. (2008) A report on location of death in paediatric palliative care between home, hospice and hosptial. Pallia- tive Medicine 22, 831-834.
19. Neilson S., Kai J., MacArthur C.
& Greenfield S. (2010) Exploring the experiences of community-based children’s nurses providing palliative care. Paediatric Nursing 22(3), 31-36.
20. Rowse V. (2006b) Palliative care for children: a public health initiative. Paediatric Nursing 18(4), 41-45.
21. Toce S. & Collins M. A. (2003) The FOOTPRINTS Model of Pediatric Palliative Care. Journal of Palliative Medicine 6(6), 989-1000.
22. Davies B., Sehring S. A., Partridge J.C., Cooper B. A., Hughes A., Philp
J. C., Amidi-Nouri A. & Kramer R. F. (2008) Barriers to Palliative Care for Children: Perceptions of Pediatric Health Care Providers. Pediatrics 121, 282-288.
23. Association for Children with a Life-Threatening Illness (ACT) and Royal College of Paediatrics and Child Health (RCP&CH) (2003) Guide to the Development of Paediatric Palliative Care Services, 2nd edn. ACT/RCP&CH, London.
24. Willis E. (2007) Symptom care flowcharts: a case study. Paediatric Nursing 19(1), 14-17.
25. Vats T. S. & Reynolds P. D. (2006) Pediatric Hospital Dying Trajectories: What We Learned And Can Share. Pediatric Nursing 32(4), 386-392.
26. Mackenzie J. & MacCallam J. (2009) Preparing staff to provide be- reavement support. Paediatric Nurs- ing 21(3), 22-24.
27. Zelcer S., Cataudella D., Cairney A. E. L. & Bannister S. L. (2010) Pallia- tive Care of Children with Brain Tu- mors. Archive of Pediatric and Ado- lescent Medicine 164(3), 225-230.
28. Pearson H. (2010) Managing the emotional aspects of end of life care for children and young people. Pae- diatric Nursing 22(7), 31-36.
29. Knapp C. A., Madden V. L., Curtis C. M., Sloyer P. & Shenkman E. A. (2010) Family Support in Pediatric Palliative Care: How Are Families Im- pacted by their Children’s Illnesses?. Journal of Palliative Medicine 13(4), 421-426.
30. Matthews K., Gambles M., El- lershaw J. E., Brook L., Williams M., Hodgson A. & Barber M. (2006) De- veloping the Liverpool Care Pathway for the Dying Child. Paediatric Nurs- ing 18(1), 18-21.
31. O’Brien I., Duffy A. & Nicholl H. (2009) Impact of childhood chronic illnesses on siblings: a literature review. British Journal of Nursing 18(22), 1358-1365.
32. Erichsen E., Hadd Danielsson E.
& Friedrichsen M. (2010) A phenom- enological study of nurses’ under- standing of honesty in palliative care. Nursing Ethics 17(1), 39-50.
33. Dunlop S. (2008) The dying child: should we tell the truth?. Paediatric Nursing 20(6), 28-31.
34. Brook L. & Hain R. (2008) Predict- ing death in children. Archives of Dis- ease in Childhood 93, 1067-1070.
35. Davies R. (2003) Establishing need for palliative care services for children/young people. British Jour- nal of Nursing 12(4), 224-232.
36. Ewing B. (2009) Wish Fulfillment: Palliative Care and End-of-Life In- tervention. Pediatric Nursing 35(2), 81-85.
37. Clarke J. & Quin S. (2007) Pro-
fessional Carers’ Experiences of Providing a Pediatric Palliative Care Service in Ireland. Qualitative Health Research 17(9), 1219-1231.
38. Keene E. A., Hutton N., Hall B. & Rushton C. (2010) Bereavement De- briefing Sessions: An Intervention to Support Health Care Professionals in Managing Their Grief After the Death of a Patient. Pediatric Nursing 36(4), 185-189.
39. Rushton C. H. (2005) A Frame- work for Integrated Pediatric Pallia- tive Care: Being with Dying. Journal of Pediatric Nursing 20(5), 311-325.
40. Hylton Rushton C., Reder E., Hall B., Comello K., Sellers D. E. & Hutton N. (2006) Interdisciplinary Interven- tions To Improve Pediatric Palliative Care and Reduce Health Care Profes- sional Suffering. Journal of Palliative Medicine 9(4), 922-933.
41. Children’s Sunshine Home (2010). Information downloaded from http://www.sunshinehome.ie/ on 15th April 2011.
42. O’Leary N., Flynn J., MacCallion A., Walsh E. & McQuillan R. (2006) Paediatric palliative care delivered by an adult palliative care service. Pal- liative Medicine 20, 433-437.
43. Romesberg T. L. (2004) Under- standing Grief; A Component of Neonatal Palliative Care. Journal of Hospice and Palliative Nursing 6(3), 161-170.
44. Morgan D. (2009) Caring for Dy- ing Children: Assessing the Needs of the Pediatric Palliative Care Nurse. Pediatric Nursing 35(2), 86-90.
45. Rainbows Children’s Hospice (2008) Basic Symptom Control in Paediatric Palliative Care. Retrieved from http://cnpcc.ca/documents/20 08RainbowHospiceSymptomControl- Manual.pdf on 1 April 2011.
Downloads
Published
2012-01-01
How to Cite
Hill, K. (2012). Paediatric Palliative Care: Paediatrics Prize Essay. Trinity Student Medical Journal , 13(1), Page 66–73. Retrieved from https://ojs.tchpc.tcd.ie/index.php/tsmj/article/view/1824
Issue
Section
Features
License
Authors retain copyright and grant the journal the right of first publication with the work simultaneously licensed under a Creative Commons Attribution (CC-BY) 4.0 License that allows others to share the work with an acknowledgement of the work’s authorship and initial publication in this journal.
Provided they are the owners of the copyright to their work, authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal’s published version of the work (e.g., post it to an institutional repository, in a journal or publish it in a book), with an acknowledgement of its initial publication in this journal.
